Monthly Archives: November 2011

33 Week Doctors Appointments

Today we had our regular OB appointment, as well as met with the neonatologist (baby specialist), and had another fetal echo done, but first we had an MRI done.

Our neonatologist recommended that we have an MRI done of Carson’s brain to make sure it is developing properly. Sometimes heart conditions can lead to lack of blood flow to the brain and therefore causing the brain to not develop fully or properly. So Dr. Miller recommended the MRI to just make sure. He looked at his brain during ultrasound several times and has never seen anything of concern, but an MRI can look more in depth. Well let me tell you, this child is getting HEAVY and laying on my back is one of the most uncomfortable positions to be in. They called me back and put me on the ‘bed’ and strapped me down. I was so uncomfortable to begin with, then they pushed me into the ‘hole’ and it was a tight fit, my stomach was touching the top. Needless to say I felt trapped, I wasnt able to move and it was HOT and NOISY. I lasted about 15 minutes before I had to be removed, I was so uncomfortable and freaked out that I actually got sick. =(. I tried one more time to get this done ‘I needed to be strong for my son’ but I just couldnt do it. I lasted another 10 minutes and had to be removed again and we didnt try anymore after that. So we got about half of the images we needed. Hopefully they will be enough to show that his brain is perfect, otherwise I will have to go in for another MRI but they will give me medication that will relax me.

Next, we met with Dr. Miller, he did an ultrasound and discussed the amnio with us (which we were supposed to have done today). He explained that he does not recommend doing the amnio now because of the risks involved. An amnio can make the water break, or can cause infection and premature labor resulting in a premature baby. If he were born premature he would not be able to have the proper medication he needs because it would cause bleeding in the brain, so he said it was not a good idea right now, that the only reason to do the amnio is to test for a certain deletion of a chromosome, that ultimately will result in a death sentence. He said there were certain markers that he could look at, and Carson has none of them except his heart defects, so he is pretty confident he doesnt have that deletion and therefore does not recommend the amnio at this point.

Then we met with our OB. Dr Gumns, who is awesome, she just made sure we didnt have any questions and let us on our way to talk to Jennifer, who is a lactation consultant, and pretty much our go to girl. Jennifer took us on a tour of both hospitals. We got to see where I will deliver, and where Carson will go in the NICU at both Hollywood, and CHLA. Both NICU’s are amazing, the staff seems awesome and we feel even more confident in the care that he will receive. We also go to see the CTICU (cardio throatic intensive care unit) it is specifically for heart babies and children. There is one nurse per baby/child and they are private rooms. Nick and I will be able to stay with Carson every hour of every day if we’d like and we love that.

Finally, we went back to CHLA and had a fetal echo. His heart is doing well, its not worse or better it is the same, and although we are all praying for a miracle Im glad to know he is staying the same and is not worse.

Nick and I feel very confident after today that Carson and I will be under the best care possible. Carson is getting so big! He is already 5 lbs, according to the ultrasound today, and he is showing his mommy how strong he really is by bruising her ribs.He is a wiggle-worm and went from head down at the ultrasound in the morning, to head up at the fetal echo. A moving baby is a healthy baby =)

Thank you again everyone for all your love and support!

-Rheanna

 

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Welcome Friends and Family

Nick and I have created this blog to help everyone be as informed as possible, with Carson. We will update this blog as we find out information and any friends and family can come here to read for themselves what is going on at any given time, rather than hearing it from someone else.

A look back: In April, Nick and I were excited and nervous to find out we were expecting. We went on with life, normally except now with more doctors appointments. At 20 weeks along we found out we were expecting a baby boy and figured out that we would name him Carson Nicholas.

Today we are 32 weeks pregnant, at 21 weeks pregnant our OB sent up for a fetal echo, which is an ultrasound that looks at the heart in depth, we were sent just for precautionary measure and really were not prepared for what happened next. As the ultrasound went on we were knew something was wrong, because they kept looking at the same spot over and over. After it was finally over they called the doctor into the room and had her explain to us what was going on. That day Carson was diagnosed with coarctation of the aorta, and a large VSD.

Since then the diagnosis has changed. We changed care, and are now being seen at Hollywood Presbyterian Hospital, and Children’s Hospital Los Angeles. The diagnosis is no long coarctation of the aorta, but aorta artesia. Coarctation of the aorta is a narrowing of the aorta in one area, and aorta artestia is the whole arota being too narrow. His VSD diagnosis never changed, it is still there, and it is simply a hole between the two lower chambers of the heart.

These two diagnosis mean that he will need surgery when he is born, more than likely within his first week of life. Right now he is safe, his mama is breathing for him and oxygenating his blood for him, therefore his heart defects do not affect him in the womb. We are doing everything we can to make sure he will get the best care possible when he is born. He will be born via induction at Hollywood Pres. We will be meeting with tons of doctors from here on out throughout the rest of this pregnancy and will update this blog as we find out any new information.

We ask not for sorry, but for prayer, there is power in prayer and we can all hope and pray for baby Carson. We thank you all for your love and support. It really does mean the world to us.