Sorry to our followers that it has taken this long to update you.
We went in on Thursday March 8th for Carson’s cath procedure. The procedure took about 3 in a half hours. Me, Nick, and my mom (Grammy) were all there. It was a long three hours! After the procedure was over the cardiologist who performed it came to talk to us and tell us how it went. She said that the pressure of the narrowing of the aorta was at a 35% and so they ballooned it and it is now at a 5%, the perfect pressure is 0%. She said all in all the procedure went well and that we will probably have to do one more for measurements and stuff before his next open heart surgery.
When we scheduled the procedure they scheduled it as out patient so I was nervous. We live an hour away from Children’s Hospital Los Angeles and I just was hoping they would keep him over night just in case. Well, be careful what you wish for! Not only was he admitted but we stayed 5 days. They first admitted us because they checked his labs and his hemoglobin was lower than normal so they wanted to keep him to do a blood transfusion. (As soon as I am done breast feeding I will be a life time blood donor! I gave blood 6 or 7 times before but I am FAR more passionate about it now.)
So they gave him the blood and everything was fine. But when I changed his diaper I noticed his foot was cold on the leg they did the procedure on. So I brought it to the attention of the nurse who brought in the cardiologist and the conclusion was that he developed a blood clot.
So he was put on heparin (a blood thinner) through IV, and every 6 hours they did a blood draw to check his clotting levels. It was HORRIBLE! I hated that they had to poke him so much. I cried with him every time. He was on heparin Friday, Saturday, and Sunday. On Sunday they did a blood draw and found his clotting level was still too low. (if the heparin dosage is too high it could cause internal bleeding so they have to monitor it closely and only increase the dosage in small amounts) So they upped his dosage again, 6 hours later they tried to take blood and couldnt get the vein. My poor baby was a pin cushion. His IV was in his right hand and his cath was in his left leg so they could only draw from his left arm or right leg. When they didnt get the vein I was not willing to let that lady try again so the nurse came in and I talked to her. There was a nurse there that was a “great stick” and I agreed that I would let her try but that if she didnt get it right away she wasnt allowed to ‘fish,’ so a couple hours later she tried and didnt get it. So we talked again and we agreed that I wouldnt let another person try to take blood unless it was an IV nurse. I really didnt want anyone else poking him but since they had to I only wanted someone who was the “best.” So later that evening an IV nurse came. She tried to get a vein in his hand and failed, and then tried his head and failed there too. So Nick and I lost it, we said enough is enough. If he needs to be taken off the heaprin and put on something else so be it but we are not putting him though any more of this.
So Monday morning they took him off the heparin and put in on an injection called Lovanox (I may be spelling that wrong but its a blood thinner as well). He was supposed to get the shots twice a day (every 12 hours) for a week. So the plan was that he would be there till at least Tuesday and on Tuesday or Wednesday we were supposed to have a chance to go home and I was supposed to give the injections. I was NOT excited about having to hurt my child but I was so ready to leave.
They said that if the clot didnt dissolve that it could cause less blood flow to his leg and cause his leg to be a tad bit shorter than the other. With his heart defect he already has enough to go through I didnt want him to have to go through have custom shoes or inserts made.
Tuesday came and my mom was planning to come visit regardless of it we were discharged or not. She got there and not long after the cardiologist came in. The cardiologist started assessing Carson and as soon as she touched his foot she got excited. It was WARM! not only was it warm but his pulse was back. Even I could feel it and I never even knew what to look for before going through all this. So we got to go home on Tuesday March 13th without any injections! I was so excited and so was Nick. March 13th marked 2 years of him and I being together and it was such a special gift to get to come home and spend it as a family.
To be honest I had a hard time emotionally being at the hospital this time. Carson seemed more blue than what his ‘normal to me’ was. Later it was explained to me that because of the narrowing of his aorta it caused more blood to go to his lungs, so when they fixed his narrowing, a more normal amount of blood was going to his lungs and so he was bluer than what I thought his normal was but according to the cardiologists its very normal for his condition and stage.
Its been two weeks that he has been home and he is doing great he is back to his normal self.